“Thank you so much for your thoughts on our CHC predicament. It was very detailed and was of great help. I used some of its content with the solicitor to prepare the document lodging our appeal against the CCG to have an independent NHS England review. I again thank you, the report helped me focus on the task and I have now a clear view on how we move forward even if the conclusion isn’t favourable.”
“Just wanted to say thank you for everything. I got E a lawyer thanks all to you and things are getting a little easier after a nightmare few weeks.
You really stood out on safeguarding across all professions I have talked to in my own career and last few weeks.
You saved my sanity and probably E’s life.
Thanks so much, I’m most grateful for your attention to detail and guidance and support.”
So it’s moving and something is happening; we got the wheels turning and not without your help. I’ll keep you posted, and I really liked the law firm you referred me to. I’m so grateful and you’ve inspired me to keep going, till she gets proper help.”
The indicative budget they are offering seems really reasonable covering personal care, ASD mentoring, physio and support to access the community. It seems too good to be true!
“It’s been a long, hard, stressful, anxious and frustrating time for us all. Without your professional knowledge and genuine human kindness due to the passion you have for helping and genuinely caring for people like me, we would of had no choice but to give up fighting, a long time ago.
It’s down to you and you alone that I now have a fighting chance of ensuring justice prevails. I really hope our complaint is upheld by the LGSCO not just for myself, but for the many others who are in the same situation as me. This proves there is at least a ray of hope!”
“Please do not apologise for your request that we consider a donation.We’ve already agreed that we needed to do this in the light of your amazing support. Having heard you speak (which served to reconnect me as a social worker to stuff that I hadn’t realised I had lost sight of) I am convinced of the need to make sure that CASCAIDr is out there holding Local Authorities to account when the pressures of austerity tempt them to forget both the letter and the spirit of the Care Act. We will follow the link and get that done, with our sincere thanks.”
“Thank you so much for your detailed email. I’m going to write a letter to social services. You’ve given me the strength to put some commitment into sorting this out. Thank you so much for your very detailed long response. That must have taken so much of your time to do. I’m going to donate some money to your extremely vital legal organisation – for people such as myself you’re an affordable lifeline.”
“Thanks so much for your frank reply. You are quite right that I could well have an axe to grind. I feel that I am keeping my sister’s best interests at heart and her husband is not; he has his own agenda – but how are you to know that, just because I say that’s how it is? I do appreciate how straight you are. It is all very sad. Of course I will make a donation. Your advice is great.”
“When we sent the letter that CASCAIDr had put together, we did get a response from the Council. It helped to show them that the points we were making about R were valid, and made a case for R to attend the education trust for an additional two days. The council is now funding two days and R is funding a third. His day care place elsewhere on a Friday is also funded now. This arrangement is likely to continue until he is at least 25. It would have been highly detrimental for him to be left unoccupied for most of the week as had been the case for most of last year. This put his progress back for a time that he is only now regaining. He now enjoys living at his supported living for the most part – he has a friend there who looks out for him. Thank both of you for helping with the letter that seems to have had a positive effect for R. I enjoyed my conversations with your caseworker and it made all the difference to have someone who was prepared to listen to us after the negativity we’d had from Social Services.”
“[After support with an LGO complaint about charging and disability related expenditure] Here is the wonderful result so far. It is still in draft and the final decision by Ombudsman will be published soon, but I could not wait to share the news with you. I trust your knowledge and all this would not have been possible without your precious input. I would like you to make it public through your charity It is important for other parents to understand the technicality of the deductions due to DRE: so important and so hidden away, that most parents I talked to did not even know the existence of this possibility to reduce the contribution to the Council.”